My life has significantly improved in the last month thanks to a
CPAP machine treating my obstructive
sleep apnea. If you are tired all the time or think you are having
trouble breathing when you sleep, please read this post. Sleep apnea
is a dangerous condition that ruins your quality of life and may lead
to early death. You might be able to greatly improve your life with
simple treatment. If you’re looking for more information, Apnea Board has been helpful to
me.
For the past year and a half I’ve been really tired. Sleeping 8
hours a night and a 90 minute nap in the day, still falling asleep in
my chair. I chalked it up to Covid lockdown or something and ignored
it for awhile. As far as I knew I was sleeping fine; Ken said I was
snoring a lot and sometimes struggling for a breath but he didn’t
seem concerned. Finally it clicked and I realized it was not normal.
Now I’m using a CPAP and I’m sleeping well and am full of
energy.
Diagnosis starts with your doctor, who refers you
to a sleep specialist, who listens to your story and takes a look at
your airway and orders a sleep study. You can
do the study at home, you just borrow a small monitoring kit for a
night and they collect and analyze the data. It’s very simple, they
produce a score called AHI
which quantifies any breathing problems. Most insurance will cover the
testing.
Before the test I learned a lot myself with a
pulse oximeter that records my blood oxygen every few seconds. It
showed me my oxygenation was dropping very low every 50 seconds, all
night. That is not normal. Then I took a video of myself sleeping and
saw that basically I was not breathing at all normally, just getting
the occasional gasp of air. It’s a wonder I’m still alive. The
sleep test confirmed severe OSA.
Treatment comes after diagnosis. There’s a
bunch of treatment options; my doctor recommended a CPAP machine.
These work by pumping higher pressure air into your mouth and nose;
the pressure keeps your airway inflated and lets you breathe. A simple
CPAP is not a ventilator, it’s not breathing for you, but it’s
similar. You turn on the machine, put on a mask sealed to your nose
(and mouth if needed) and sleep.
I’ll he honest: a lot of people have a hard time with CPAP,
there’s like a 50%
rejection rate from people who hate the idea or find the machine
uncomfortable. I was highly motivated and literally from the first
night the improvement was so enormous that I’ve taken to it
enthusiastically. I sleep fine with it, much better actually. My blood
oxygen is now well above 90% all night and I have very few breathing
incidents any more. I don’t love the thing; the mask is a nuisance,
there’s some mild side effects like more
farting. But I dislike suffocating in my sleep a lot more than the
hassle.
Benefits for me were immediate and enormous.
Literally the first morning I was dancing to music while making
coffee. I can read in the afternoon without falling asleep. If I take
a nap it’s a 10 minute snooze, not a 90 minute snorefest. My blood
pressure is lower. (OSA basically creates panic all night and is a
terrible strain on your body.) No luck on weight loss yet, that’s a
benefit many OSA sufferers report. More energy to exercise though. One
thing I’ve noticed in CPAP users; they tend to get very attached to
their machines and can’t imagine going a night without them. I
didn’t understand that before. Now I do.
Equipment was a bit of a mystery to me at first
and the medical system is not great at advising patients. By far the
best CPAP machine for basic OSA is the ResMed
AirSense 10 AutoSet. The "AutoSet" is key; the machine
automatically adjusts to its sensing of your breathing so you don’t
have to guess at the right pressure. It’s a really nicely designed
piece of equipment. If you’re data-minded be sure to put in an SD
Card and get OSCAR to
get very detailed second by second info on your breathing while you
sleep. The AutoSet goes for about $800 now. Insurance should cover it
but they are notoriously a pain in the ass about it. Do not let your
insurer bully you into getting inferior equipment. For me it’s the
best $800 I’ve ever spent.
The other half of the system is the
mask. My first mask was the AirTouch
F20, a basic full face mask. It has worked great. After my first
month I switched to a smaller AirFit
F30i, the way the hose comes out of the top of your head is a big
improvement. Note these are both full face masks; if you don’t
breathe through your mouth (much) you can probably use a much smaller
nasal mask or pillow. A full mask kit is about $150 and again should
be covered by insurance.
The medical system wants you to buy all this stuff from a
"Durable Medical Equipment supplier" and the quality of
those vendors varies enormously. Some are outright scams, including
doctor kickbacks. I ended up skipping insurance and buying from CPAP Direct. In theory my
insurance will reimburse me but so far that hasn’t worked out. The
big pieces require a prescription but you can buy a lot of components
and replacement parts, on Amazon without a prescription for much
cheaper.
Maintenance is a bit of a hassle. I have to refill the humidifier
tank every day. Also clean parts of the mask, other parts need weekly
cleaning. The mask is intended to be replaced on a regular schedule;
every month for the "pillow" (the part in contact with your
face). That’s where ordering cheap replacements on Amazon can save a
lot of money, maybe even if you have good insurance.
Conclusion I can’t emphasize enough what an
improvement to my life CPAP treatment has been. Obstructive sleep
apnea sucks. I encourage anyone reading this who wonders if they have
a breathing problem at night to talk to their doctor, or maybe try a
pulse oximeter on their own, or address it somehow. CPAP treatment
isn’t so hard! It works! I’m enthusiastic enough about it to be
writing this blog post and am glad to discuss it privately with anyone
who asks.
PS: a special thank you to Obama and the ACA for making it possible
to treat and discuss this problem without rendering yourself
uninsurable.